A Message from Jesse & Meghan.

On January 7, 2020 - 68 days before the world shut down for COVID, our first born son, William, was diagnosed with a rare genetic disorder called Angelman syndrome. We were paralyzed with shock and went through our grieving process. We cannot control how life has turned out for our son, William, but we can control how we react. So we decided to FIGHT. Fight for our son, our family, and the Angelman syndrome community. We are committed to providing him every opportunity to thrive in life. We will assume competence in him every day and let him tell us what he is or is not capable of.

​For the community, we are committed to doing our part to raise funds to support research for a cure, bring awareness to this disorder, and to foster hope and excitement around what can be for all of the individuals out there living with this this rare genetic disorder.

We cannot do it alone. It takes a village and we are grateful for any support you can offer.

Sincerely,
Jesse & Meghan, parents of William and Henry

Our Journey to a Diagnosis.

Since diagnosis, the journey is ever changing with unexpected highs and challenging lows - nevertheless, we persist.

The Will.i.CAN Impact.

As of January 1, 2025

Raised over $868,000 for the Foundation for Angelman Syndrome Therapeutics (FAST) and over $12,500 for the Angelman Syndrome Foundation (ASF) through peer-to-peer donations & fundraising events.

Sold over 175 Will.i.CAN t-shirts to friends around the USA and in 6 countries worldwide to help bring awareness to AS. Join the Will.i.CAN swag crew today by purchasing your own! 

Advocated at the Minnesota State Capitol and Capitol Hill in Washington, D.C. to be the voice for William until he has one of his own. In 2024, our efforts along with the community showed initial wins.